Eli is anxious. He cannot rest comfortably and has been keeping his dad up long hours every night. I am certain he knows what has happened and he's none too excited to let something like that happen again. Eli and David go to Shreveport a week from today for a Feb. 1 appointment to have his splints removed, sutures removed and new legs revealed. I hope after that Eli can start to feel like himself even more.
I saw the movie Extraordinary Measures yesterday. It's about two kids with Pompe MD and their amazing parents who work tirelessly to find a cure and succeed. The movie showed some of the hardship, but not all. I'll reflect on it later. I recommend the movie.
Love you all,