Thursday, July 23, 2009

A Ramirez Surgery without Elijah the Great

David had to have surgery on his back to remove the "whopper" of a piece of back disc that had slipped from its rightful spot. Now, I apologize for not posting about DJR's surgery in advance of the event, which happened on July 14, but for some reason, David insisted that I not. To clarify, he has given permission now for me to post about the event...maybe only because he posted on Facebook about his experience.

Anyway, we're 1.5 weeks post surgery and he is doing very well. David's mom, Anna, has been here to help with Elijah and serve as David's home health nurse. Lifesaver.

Elijah is doing great. Today was his last day of school for a short summer break. Eli has an ear infection and congestion, but once we got him on antibiotic he started feeling much better. Sophia has an ear infection...likely from all of her summer swimming. She's doing better though.

Wishing you all a wonderful upcoming weekend of rest and fun.

Love you all,

Sunday, July 12, 2009

It’s a Small World Mini Laps 2009

Dearest Friends and Family,

The extraordinary Elijah was born December 23, 2006, as a tiny guy with surprises beyond the imagination.

No thumbs. No radius bones. No knee joints. Legs that won’t grow. A skull that won’t expand. A hole in his palate. Sensitive skin. Arms that won’t straighten.

Physicians and specialists looked at us in disbelief — many grasping for a diagnosis and longterm outlook for Elijah’s future. We were forced to become immediate Eli Experts and make lifesaving and life‐changing decisions for our son. We didn’t choose this extraordinary journey, but we’re making it with genuine passion and fierce determination.

Since our journey began 2½ years ago, we’ve been the humble recipients of extraordinary kindness and generosity – from many of you. Thank you.

Today, we write with a simple request, please support Elijah’s “lap” in The Little Light House’s Mini Laps with a financial gift. On September 26, Elijah will take to the track and strut his stuff. How Elijah will go around the track is yet to be electric chair, scooting or wagon...but I can guarantee that he will make his first Mini Lap with pride. Mini Laps is an important fundraiser for The Little Light House, which provides Elijah’s education tuition‐free. The Little Light House is staffed with licensed therapists in all specialties and specially‐trained teachers in each classroom. Eli is in the Orange Class where he learns with nine other extraordinary kids. The teachers and classroom associates are remarkable individuals who have such compassion and care for each child. The therapy Elijah receives is developed through strategy sessions involving all of the disciplines.

We are honored to have Elijah at the Little Light House. Eli was placed on the waiting list at 3 months old — he was accepted just after his second birthday. Eli will remain at the Little Light House until after his sixth birthday. In the four years he will spend at the Little Light House, I can imagine the extraordinary accomplishments he will make.

He will play. He will share. He will speak. He will run. He will thrive. He will amaze.

The Little Light House receives no government funding and no United Way support. The Little Light House is 100% supported through the generous financial gifts from caring individuals like you.

This year, they will invest $26,000 in our sweet Eli. Will you help us give back? I know many deserving charities ask for your support, but this year, will you join us in supporting a Christian school specially designed for extraordinary kids? Kids who didn’t ask to be extraordinary. Kids who need a little more attention – a little more help to reach their very best potential. Kids who will succeed thanks to The Little Light House.

With gratitude and love,
David, Melissa, Sophia and Elijah

P.S. We cannot wait to share with you about Elijah’s successful lap. Watch for an update from us after September 26.

Make your gift online, visit The Little Light House visit, click on donation then Mini Laps. Be sure to reference you are sponsoring Elijah Ramirez.

Saturday, July 11, 2009

There it is

Eli's favorite phrase, "There it is." He learned it months ago from his good friend Dora the Explorer...maybe you know her too. I love to hear Eli talk and day by day he is improving. Ask him what a dog says and he will say either wuf or meow...ask him what a cat says and he says the other. SO CUTE.

Sophia sang today "...the star strangled banner..." Clearly, David and I should teach her those important words, but it is so cute to hear her try to remember them and sing them proudly. As she was singing about the ramparts she stopped and said, that makes no sense, but to her "strangled banner" comment.

Here are the lyrics for those of you thinking you need a refresher like Sophia.

O! say can you see by the dawn's early light
What so proudly we hailed at the twilight's last gleaming?
Whose broad stripes and bright stars through the perilous fight,
O'er the ramparts we watched were so gallantly streaming?
And the rockets' red glare, the bombs bursting in air,
Gave proof through the night that our flag was still there.
O! say does that star-spangled banner yet wave
O'er the land of the free and the home of the brave?

On the shore, dimly seen through the mists of the deep,
Where the foe's haughty host in dread silence reposes,
What is that which the breeze, o'er the towering steep,
As it fitfully blows, half conceals, half discloses?
Now it catches the gleam of the morning's first beam,
In full glory reflected now shines in the stream:
'Tis the star-spangled banner! Oh long may it wave
O'er the land of the free and the home of the brave.

And where is that band who so vauntingly swore
That the havoc of war and the battle's confusion,
A home and a country should leave us no more!
Their blood has washed out their foul footsteps' pollution.
No refuge could save the hireling and slave
From the terror of flight, or the gloom of the grave:
And the star-spangled banner in triumph doth wave
O'er the land of the free and the home of the brave.

O! thus be it ever, when freemen shall stand
Between their loved home and the war's desolation!
Blest with victory and peace, may the heav'n rescued land
Praise the Power that hath made and preserved us a nation.
Then conquer we must, when our cause it is just,
And this be our motto:
'In God is our trust.
'And the star-spangled banner in triumph shall wave
O'er the land of the free and the home of the brave!

Love you all,

Friday, July 3, 2009

Eli loves water

Have I mentioned how much Elijah loves to play in water. His adaptions to enjoying interesting activities makes me very happy. When he was tiny, he screamed the entire way through his bath...sponge bath that is. Now, he wants me to turn on the faucet so he can sit on the counter and swat the stream of water...makes a huge mess, but we both just laugh and laugh.

David is feeling better, much better. My prayer is that the better-ness remains!

David scolded me for airing all of our business on the blog. He said he was surprised I mentioned his back thing. I reminded him of some recent family business that I didn't put on the blog to show that I really do have a line for what gets publicly recorded. I figure he won't tell you about his back, so I must. We'll just see what he has to say about this entry.

I love you all,