Our dear friends the Sperou family in Massachusetts recently asked if we'd be interested in seeing Elijah represented by a runner during the upcoming Boston Marathon in April 2014. Of course we said yes! What a fantastic opportunity, to know that someone has dedicated themselves to running 26.2 miles, thinking about Eli the entire time, working to raise money for children like Eli who are dealing with rare diseases. Kelsey Hoontis, our new superhero, is sponsoring Eli as part of an organization called "Running For Rare Diseases." They recently spoke with Christopher and Laurie Sperou about sponsoring their precious daughter, Shauna, who became a good friend of Eli's during our visit to the Rothmund-Thomsen Syndrome conference in Washington, D.C. Kelsey is one of three (for now) runners who will be representing RTS kids, and I'll tell you honestly, it feels so good to see Eli's syndrome garner more attention. We felt so alone in those early days when we had j
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My name is Maria Munson, I am William Fischer's preschool teacher. Fiona has shared your story and Gavin's with us and please know that you and your families are in our thoughts and prayers. May God give your children the strength to fight and win their battles.
I read your blog everyday--at least!--even if there's nothing new on it. I email it to my sister because she can't open it at work on her computer, so I change it into a text file and send it. I feel happy to be one of the few people outside of Tulsa who has actually held Elijah. I don't know how many times a day I pray for your family and for Elijah specifically. Yesterday I was thinking about the song "These are the Days of Elijah" because you all are on my heart so much.
Minipak
I think of you all often, and you all inspire me daily.
Much love to you all!
Love,
Nadra, Charlie & Ian
Thank you all for interceding on our behalf. Some of you have prayed faithfully for years for our family and have set a foundation that will be realized at this time and in the years to come. Look for great things from God and this family. Be encouraged that God loves you and will bless you as he has shown mercy and grace to us. God be with you all.
I am Miriam Overgaard and I'm a neighbor of David and Melissa. I'm not the best correspondent so I'm thankful for this blog for keeping me updated on Eli and his family.
Eli is is a wonderful symbol of hope for all of us, and I feel fortunate to be part of his growing circle of friends.
Beth