Circus break

By -
Yesterday, Elijah decided he should stay in the hospital so he gave his circus tickets to Sophia. We had a great time at the Akdar Shriner’s Circus. We are so thankful for the fundraiser that makes the Shriner’s Hospital possible for our dear son.

Elijah seems to be gaining strength. He has nothing going in through his tummy, but is receiving adequate nutrition through his central line. Now, we just wait and give his intestine time to heal before trying to feed him again.

Thank you for your continued prayers.
Melissa

Comments

Post a Comment

Popular posts from this blog

Elijah Will Be Represented at Boston Marathon 2014

By -
Our dear friends the Sperou family in Massachusetts recently asked if we'd be interested in seeing Elijah represented by a runner during the upcoming Boston Marathon in April 2014. Of course we said yes! What a fantastic opportunity, to know that someone has dedicated themselves to running 26.2 miles, thinking about Eli the entire time, working to raise money for children like Eli who are dealing with rare diseases. Kelsey Hoontis, our new superhero, is sponsoring Eli as part of an organization called "Running For Rare Diseases." They recently spoke with Christopher and Laurie Sperou about sponsoring their precious daughter, Shauna, who became a good friend of Eli's during our visit to the Rothmund-Thomsen Syndrome conference in Washington, D.C. Kelsey is one of three (for now) runners who will be representing RTS kids, and I'll tell you honestly, it feels so good to see Eli's syndrome garner more attention. We felt so alone in those early days when we had j
Read more

Tell us who you are

By -
Take a minute to sign into the blog, then reply to this post. Tell me, and everyone, who you are and what Elijah means to you. If you're the friend of a friend, then you're family now. Remember, the best blog strings go on for miles. As you view our list of friends, know that we keep each of you in our prayers just as you pray for Elijah. Dave
Read more

Seven...SEVEN!!

By -
Image
It's here. Eli's big day. Today, Eli turns 7 years old. The feelings and emotions I have for this day are overwhelming. It's been a long, long 7 years, but I can remember this day in 2006 like it was yesterday...and the months to follow. They are etched in my memory with Sharpie...never fading. Some of the memories, honestly, I wish I could erase. The hurtful ones. Some I've written about on this blog, but most I keep hidden. We hosted a birthday party for Eli on Saturday. He invited his entire regular class and his entire special needs class to his party. I began first thing in the day warning Eli that he might not have a lot of kids come. I wanted him to be prepared for the worst. Though Eli was confident his friends would come...I wasn't sure. When party time arrived, five precious kids came to celebrate Eli's birthday. I was relieved and Eli had a marvelous time with those five great kids. That same day, we had a family celebration where we all doted on El
Read more