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Tell us who you are

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Take a minute to sign into the blog, then reply to this post. Tell me, and everyone, who you are and what Elijah means to you. If you're the friend of a friend, then you're family now. Remember, the best blog strings go on for miles. As you view our list of friends, know that we keep each of you in our prayers just as you pray for Elijah. Dave
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Elijah Will Be Represented at Boston Marathon 2014

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Our dear friends the Sperou family in Massachusetts recently asked if we'd be interested in seeing Elijah represented by a runner during the upcoming Boston Marathon in April 2014. Of course we said yes! What a fantastic opportunity, to know that someone has dedicated themselves to running 26.2 miles, thinking about Eli the entire time, working to raise money for children like Eli who are dealing with rare diseases. Kelsey Hoontis, our new superhero, is sponsoring Eli as part of an organization called "Running For Rare Diseases." They recently spoke with Christopher and Laurie Sperou about sponsoring their precious daughter, Shauna, who became a good friend of Eli's during our visit to the Rothmund-Thomsen Syndrome conference in Washington, D.C. Kelsey is one of three (for now) runners who will be representing RTS kids, and I'll tell you honestly, it feels so good to see Eli's syndrome garner more attention. We felt so alone in those early days when we had j...
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Dad reporting in, late at night (11:27 p.m.): Not a creature was stirring, until from the baby monitor there arose such a clatter, Elijah sitting up in his crib talking to himself at the top of his lungs. Seriously, a conversation complete with questions, answers, exclamations and thoughtful responses (i.e. "Hmm! Yeah!") I just had to get him out of bed and play with him, and also give him some more to eat. On the way upstairs, he asked me to put him on the floor of the foyer. Before I knew what was happening, he had climbed the first three steps of the flight leading to our second floor. These first steps curve and each have about twice the surface area of the other steps, so when he got to the first proper stair, I thought he might slow down or ask me to pick him up. Instead, he bore down on the step and said, "I'm climbing, Daddy!" And climb he did. One step, then the next, and although I had a hand hovering behind him the whole way, I never once had to use i...
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