Waiting to hear

By -
We are still waiting to hear something from Eli's cranial surgeon. Eli is happy. We've decreased his food intake, which has decreased his vomiting, but that really is not a good solution.

Elijah is failing his tempanograms, which is clear indication he has fluid again built up in his ears. It impedes his hearing and further delays his speech development. Tubes in the ears last only a limited amount of time and the ones we placed in Eli's ears about 15 months ago have made their way out. So, we're in talks with Eli's ENT doc too about redoing the tubes and possibly performing a partial adenoidectomy. I was surprised to learn that after the age of about 6 months, one's adenoids do nothing, but fill a space. The fact that they fill a space is pretty important in Eli who had a cleft in his palate. But, we believe the adenoids are one of the causes of his perpetual runny nose. Another dilemma to figure out, but one I know we will get through. We see Eli's ENT again Dec. 31.

Please pray I hear from Dr. El Amm soon. I will keep you posted.

Love,
Melissa

Comments

Post a Comment

Popular posts from this blog

Tell us who you are

By -
Take a minute to sign into the blog, then reply to this post. Tell me, and everyone, who you are and what Elijah means to you. If you're the friend of a friend, then you're family now. Remember, the best blog strings go on for miles. As you view our list of friends, know that we keep each of you in our prayers just as you pray for Elijah. Dave
Read more

Is God Listening? I Believe He Is...

By -
Elijah's feet will be amputated tomorrow at 7:00 a.m. Central. Tonight, both sets of grandparents are at their hotels, and so is Melissa and my sweet daughter Sophia. It's just me and Eli in the hospital room, watching TV and trying to settle down after a long day of blood draws, x-rays, measurements and several dozen forms to read and sign. Everybody keeps asking me how I'm doing tonight, because they can see something dark in my eyes. I'm trying to stay positive, but I'm somewhere between moderately jovial and barely coherent. And let's face it -- I've made it my personal mission in life to be the one who reassures everyone else, who always sees the silver lining and the ultimate goal. So when you hear me admit that I'm making the people around me sad, it's doubly upsetting, because I'm usually the person you go to when you feel sad. About ten minutes ago, I finished pouring some food into Elijah's tummy via his G-tube. After I removed the ...
Read more

16 Steps To Victory

By -
Dad reporting in, late at night (11:27 p.m.): Not a creature was stirring, until from the baby monitor there arose such a clatter, Elijah sitting up in his crib talking to himself at the top of his lungs. Seriously, a conversation complete with questions, answers, exclamations and thoughtful responses (i.e. "Hmm! Yeah!") I just had to get him out of bed and play with him, and also give him some more to eat. On the way upstairs, he asked me to put him on the floor of the foyer. Before I knew what was happening, he had climbed the first three steps of the flight leading to our second floor. These first steps curve and each have about twice the surface area of the other steps, so when he got to the first proper stair, I thought he might slow down or ask me to pick him up. Instead, he bore down on the step and said, "I'm climbing, Daddy!" And climb he did. One step, then the next, and although I had a hand hovering behind him the whole way, I never once had to use i...
Read more