Eli is home sweet home, again

By -
Elijah is happily home from the hospital once again. He snuggled right into his own bed and fell asleep within 15 minutes of his arrival. He has such a difficult time sleeping at the hospital. He still has some lingering diarrhea, which we will monitor at home.

Specific Eli prayer requests:
Elijah’s GI bug completely disappear, soon.
Elijah gain weight, blow right past 12 pounds and reach 13 in record time.
Elijah stay well for the next 3 months as we work to beef him up for his surgery in Shreveport.
Pray that Elijah’s hearing and sight continue to improve.
Pray that David and I will make the choices that are best for Elijah’s long-term success.

Love,
Melissa

Comments

Amberghini said…
Welcome home, sweet boy! We missed you at your party! It was definitely exciting! :P Praying for you! Love, Amber
June 1, 2008 at 9:37 AM
Anonymous said…
We will pray for your little miracle boy. I have a 19mo old niece with Rothmund Thompson Syndrome and she has brought our entire family closer together with her love. There is a website for the families with RTS, It is rtsplace.org and you can meet others with similar symptoms
June 13, 2008 at 8:58 PM
Post a Comment

Popular posts from this blog

Elijah Will Be Represented at Boston Marathon 2014

By -
Our dear friends the Sperou family in Massachusetts recently asked if we'd be interested in seeing Elijah represented by a runner during the upcoming Boston Marathon in April 2014. Of course we said yes! What a fantastic opportunity, to know that someone has dedicated themselves to running 26.2 miles, thinking about Eli the entire time, working to raise money for children like Eli who are dealing with rare diseases. Kelsey Hoontis, our new superhero, is sponsoring Eli as part of an organization called "Running For Rare Diseases." They recently spoke with Christopher and Laurie Sperou about sponsoring their precious daughter, Shauna, who became a good friend of Eli's during our visit to the Rothmund-Thomsen Syndrome conference in Washington, D.C. Kelsey is one of three (for now) runners who will be representing RTS kids, and I'll tell you honestly, it feels so good to see Eli's syndrome garner more attention. We felt so alone in those early days when we had j
Read more

Tell us who you are

By -
Take a minute to sign into the blog, then reply to this post. Tell me, and everyone, who you are and what Elijah means to you. If you're the friend of a friend, then you're family now. Remember, the best blog strings go on for miles. As you view our list of friends, know that we keep each of you in our prayers just as you pray for Elijah. Dave
Read more

Seven...SEVEN!!

By -
Image
It's here. Eli's big day. Today, Eli turns 7 years old. The feelings and emotions I have for this day are overwhelming. It's been a long, long 7 years, but I can remember this day in 2006 like it was yesterday...and the months to follow. They are etched in my memory with Sharpie...never fading. Some of the memories, honestly, I wish I could erase. The hurtful ones. Some I've written about on this blog, but most I keep hidden. We hosted a birthday party for Eli on Saturday. He invited his entire regular class and his entire special needs class to his party. I began first thing in the day warning Eli that he might not have a lot of kids come. I wanted him to be prepared for the worst. Though Eli was confident his friends would come...I wasn't sure. When party time arrived, five precious kids came to celebrate Eli's birthday. I was relieved and Eli had a marvelous time with those five great kids. That same day, we had a family celebration where we all doted on El
Read more