Photo Update on Elijah

By -



I wanted to post a photograph of Elijah from Feb. 2007 to Feb. 2009. The difference is amazing! The 2009 photograph is him sitting in a high chair at Cafe USA playing with the condiments.
Great Grammie Edna is doing fine. She remains in ICU for initial recovery then on to a regular room. Keep praying for her.

Elijah is scheduled with Dr. El Amm this Thursday for an initial re-evaluation. Dr. El Amm is great at getting Eli an appointment no matter the short notice. I am thankful for that. It does mean he'll miss a day of school and YES, I am sure he will notice.


Love you all,
Melissa




Comments

Emily said…
awww.. he looks so much like a little boy. he's growing up fast!
February 17, 2009 at 8:30 PM
Anonymous said…
I believe I remember that moment. Bless you all for being so loving, patient and encouraging to your children. I would want other parents to be more like you. There is a lesson here. You can undoubtedly guess who wrote this comment. Love you.
February 17, 2009 at 10:45 PM
Emily Kaye said…
Wow!!! He looks so grown up!
February 18, 2009 at 9:20 AM
Post a Comment

Popular posts from this blog

Elijah Will Be Represented at Boston Marathon 2014

By -
Our dear friends the Sperou family in Massachusetts recently asked if we'd be interested in seeing Elijah represented by a runner during the upcoming Boston Marathon in April 2014. Of course we said yes! What a fantastic opportunity, to know that someone has dedicated themselves to running 26.2 miles, thinking about Eli the entire time, working to raise money for children like Eli who are dealing with rare diseases. Kelsey Hoontis, our new superhero, is sponsoring Eli as part of an organization called "Running For Rare Diseases." They recently spoke with Christopher and Laurie Sperou about sponsoring their precious daughter, Shauna, who became a good friend of Eli's during our visit to the Rothmund-Thomsen Syndrome conference in Washington, D.C. Kelsey is one of three (for now) runners who will be representing RTS kids, and I'll tell you honestly, it feels so good to see Eli's syndrome garner more attention. We felt so alone in those early days when we had j
Read more

Tell us who you are

By -
Take a minute to sign into the blog, then reply to this post. Tell me, and everyone, who you are and what Elijah means to you. If you're the friend of a friend, then you're family now. Remember, the best blog strings go on for miles. As you view our list of friends, know that we keep each of you in our prayers just as you pray for Elijah. Dave
Read more

Seven...SEVEN!!

By -
Image
It's here. Eli's big day. Today, Eli turns 7 years old. The feelings and emotions I have for this day are overwhelming. It's been a long, long 7 years, but I can remember this day in 2006 like it was yesterday...and the months to follow. They are etched in my memory with Sharpie...never fading. Some of the memories, honestly, I wish I could erase. The hurtful ones. Some I've written about on this blog, but most I keep hidden. We hosted a birthday party for Eli on Saturday. He invited his entire regular class and his entire special needs class to his party. I began first thing in the day warning Eli that he might not have a lot of kids come. I wanted him to be prepared for the worst. Though Eli was confident his friends would come...I wasn't sure. When party time arrived, five precious kids came to celebrate Eli's birthday. I was relieved and Eli had a marvelous time with those five great kids. That same day, we had a family celebration where we all doted on El
Read more