Elijah Will Be Represented at Boston Marathon 2014

Our dear friends the Sperou family in Massachusetts recently asked if we'd be interested in seeing Elijah represented by a runner during the upcoming Boston Marathon in April 2014. Of course we said yes! What a fantastic opportunity, to know that someone has dedicated themselves to running 26.2 miles, thinking about Eli the entire time, working to raise money for children like Eli who are dealing with rare diseases.

Kelsey Hoontis, our new superhero, is sponsoring Eli as part of an organization called "Running For Rare Diseases." They recently spoke with Christopher and Laurie Sperou about sponsoring their precious daughter, Shauna, who became a good friend of Eli's during our visit to the Rothmund-Thomsen Syndrome conference in Washington, D.C. Kelsey is one of three (for now) runners who will be representing RTS kids, and I'll tell you honestly, it feels so good to see Eli's syndrome garner more attention. We felt so alone in those early days when we had just learned what Eli's syndrome was, and there was little chance of meeting someone else who had the disease. Now we're part of a network, an extended family, and the support from a legitimate support system is, well, supportive!

Would you be interested in sponsoring the runner who's sponsoring our son?


Click on this link to see the Running For Rare Diseases blog. You'll learn how you can financially support Kelsey during her run, and in turn sponsor medical research for rare diseases in general and RTS specifically. Forward the link, and spread the word! It would mean so much to me personally, and it will be a great way to be a part of Eli's life.

Write back with questions! I'll tell you what I know so far about the Marathon. If we're able, we'll be in Boston for the run. That would be amazing!



We are a Quickbooks Support company. We always Provides Solution for any error. The quickbooks support phone number can be easily solved if you call us on +18009016679.
Nice Blog It’s a really informative for all. QuickBooks is one of the best accounting software which helps in managing your company finances and accounting. We are providing technical support in Quickbooks Pro Support Phone Number. Quickbooks accounting software helps you to solve all the accounting problems. Please call us our Toll-free Number + 1-800-986-4607.
Nice Blog Thanks for sharing this usefull link. Quickbooks accounting software is helpful for maintain client payroll taxes accounting problems for instant help about Quickbooks Desktop Payroll Support Number . Our technical team always available for your help our Toll-free Number + 1-800-986-4607.
Nice Blog If you need Quickbooks Tech Support Phone Number then you can dial +1-800-986-4591 for help and support. Our technical support team always provides you the best technical help.
Our Quickbooks Support Phone Number USA 800-901-6679 for instant help. In quickbooks accounting software if you face any type of issue in this. Our Highly skilled Technicians are there for you, to resolve your queries.

Any technical issue obstructing your way ahead in Quickbooks ? Call us now, on Quickbooks Support Phone Number . Avail instant solutions for the Quickbooks technical issues persist in the software. In case, you need any assistance regarding the software, contact us 1-800-986-4607. Our team constitutes of certified proadvisors who have years of experience in handling technical issues.
alice marvel said…
nice and very informative blog click here for
QuickBooks toll free phone number to get the solution of all QuickBooks error and issues and for more detail dial on our support phone number 844-908-0801
The Qb Payroll said…
The issues in QuickBooks can’t be resisted but it can be avoided or resolved with the valuable assistance given by QB experts. The experts are deployed on the support for which users have to dial QuickBooks Customer Support Phone Number 1-833-780-0086. For More Visit: https://g.page/quickbookssupporttexas
The Qb Payroll said…
Dial +1-833-780-0086 and get best QuickBooks Desktop Support our experts 24/7 available

Popular posts from this blog

Tell us who you are